Long COVID Information & Resources

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A COVID-19 infection can result in long lasting symptoms such as breathing difficulties, headache, loss of smell and taste, brain fog, and fatigue. These long lasting symptoms have been termed “long COVID-19” and can have an impact on your physical and mental wellbeing. It can also affect family, friends, and caregivers of people who had COVID-19.

Your recovery and rehabilitation (regaining your strength) after COVID-19 can be challenging, but there are resources available to help manage your symptoms and get help when needed. Please note that these resources are general, and may not be appropriate for everyone. For more personalized information, please contact your family physician or the other options listed below.

Who can you call for help?

Online resources for patients to help manage their own symptoms:

If you are a health care provider, please visit the following sites for more information on managing long COVID:

A COVID-19 infection can result in long lasting symptoms such as breathing difficulties, headache, loss of smell and taste, brain fog, and fatigue. These long lasting symptoms have been termed “long COVID-19” and can have an impact on your physical and mental wellbeing. It can also affect family, friends, and caregivers of people who had COVID-19.

Your recovery and rehabilitation (regaining your strength) after COVID-19 can be challenging, but there are resources available to help manage your symptoms and get help when needed. Please note that these resources are general, and may not be appropriate for everyone. For more personalized information, please contact your family physician or the other options listed below.

Who can you call for help?

Online resources for patients to help manage their own symptoms:

If you are a health care provider, please visit the following sites for more information on managing long COVID:

Questions

Do you have a question for one of our experts, such as an individual with lived experience with Long COVID, or a doctor, nurse, therapist (physiotherapist, occupational, respiratory), dietician, mental health professional? Please ask your question here and one of our experts will get back to you ASAP.

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    What practical supports are available to parent caregivers of kids with long Covid?

    Gemmak76 asked 3 months ago
    1. Hello,

      Thank you for reaching out. We continue to gather and develop resources for parents and caregivers of kids with long COVID. The resources on the Getting Healthy After COVID-19: Information for patients as well as the After COVID-19: Information and resources to help you recover pages, are both available as well. These resources are designed for adults, so may not all be appropriate for kids, however, some information may be useful to help him manage some symptoms. There is a section towards the bottom of the Getting Healthy page that is specific for parents and educators that you may find helpful. You can also check out https://www.longcovidkids.org/. We strongly encourage you to call the Rehabilitation Advice Line at 1-833-379-0563. Hopefully you are able to find your child the help he/she needs to continue on his/her recovery. Please let us know if you have more questions.

      Thank you,

      - Long COVID Resources Team



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    I am asking about my sister who was in i.c.u in September, 2021 with co vid. She has not been the same since. She can’t get around very well, been on dialysis since right after the co vid. She’s had problems with shortness of breath and coughing. Now she’s having chronic diahrea, not sure if that’s related too. Where can she turn for help? Is there anyone dealing with this?

    Sherri asked 4 months ago

    Hello,

    We are very sorry to hear that your sister is struggling with so many ongoing challenges, following her initial COVID-19 infection and hospitalization. We are unable to say whether they are related to COVID-19, but can provide you with a variety of options of where to find information and seek help. 

    There are multiple resources available on the Getting Healthy After COVID site as well as the After COVID: Information and resources to help you recover (MyHealth.Alberta.ca) sites that you can use to help support your sister. There is also a YouTube video series created by the Alberta Health Living Program that explains long COVID overall as well as provides information about many specific symptoms and ways a person can self-manage those symptoms.

    We also suggest connecting with her family doctor and/or calling the Rehabilitation Advice Line at 1-833-379-0563. She may be eligible for a referral to one of the specialty clinics that can support the management of these symptoms. If this is an emergency, please call 9-1-1.

    Hopefully this information is helpful and that your sister can get some relief from these symptoms and start to feel more like herself again soon. 

    Thank you,

    - The long COVID resources team

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    My mom may have long Covid. What can we do as family to support her back to her regular health?

    Ana asked 5 months ago

    Hello,

    We are sorry to hear that your mom may be struggling with symptoms of long COVID. There are multiple resources available on the Getting Healthy After COVID site as well as the After COVID: Information and resources to help you recover (MyHealth.Alberta.ca) sites that you can use to help support your mom. There is also a YouTube video series created by the Alberta Health Living Program that explains long COVID overall as well as provides information about many specific symptoms and ways a person can self-manage those symptoms.

    We also suggest connecting with her family doctor and/or calling the Rehabilitation Advice Line at 1-833-379-0563. She may be eligible for a referral to one of the specialty clinics that can support the management of these symptoms. 

    Hopefully this information is helpful and that your mom's symptoms start to improve soon.

    Thank you,

    - The long COVID resources team

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    Is there a clinic for children with long COVID symptoms. My clinic is getting an increased number of these referrals.

    Ash asked 5 months ago

    Hello and thank you for your question. Although there is not a dedicated clinic for children with long COVID symptoms, there are a number of resources and supports available. Please visit the Getting Healthy After COVID-19: Information for Patients website and see the section called "Resources for Parents, Caregivers, Employers and Employees". An excellent collection of free, live webinars is now scheduled and can be found here. 

    Thank you,

    - The Long COVID Resources Team

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    How do I go about asking my GP for assistance with suspected long covid? I got sick for 42 days back in February 2020 when there was a shortage of tests and was never able to confirm the diagnosis. I've had ongoing health issues since that have gone unassisted (loss of breath, lightheadedness, fatigue, and dizzy spells) and want to see if I can get help with managing them.

    ASehn asked 5 months ago

    Hello,

    We are sorry to hear that you are struggling with these symptoms and that you were unable to get a confirmed diagnosis in February. There are multiple resources available on the Getting Healthy After COVID site as well as the After COVID: Information and resources to help you recover (MyHealth.Alberta.ca) sites that can help you manage your symptoms. There is also a video series developed by the Alberta Health Living Program that provides information and guidance on symptom management. 

    We also suggest continuing to connect with your family doctor and/or calling the Rehabilitation Advice Line at 1-833-379-0563. If your symptoms are long lasting, you may be eligible for a referral to one of the specialty clinics that can support the management of these symptoms.

    Hopefully these symptoms will improve for you soon.

    Thank you,

    - The long COVID resources team

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    Hello I have a concern about Long Haul Covid , I was tested positive for the BA.2 variant of Omicron back in April 2022 . I was wondering about my stomach issues because few days ago my stomach has been growling lately and it’s been due to the milk products I’ve be eating and also my boost nutrition drinks I have been drinking as well for my breakfast as well too , usually when I have the mild products my stomach would be fine , now since I had Covid in April now I’m suffering with this problem so I was wondering if I can get any suggestions on what I should do or change in my meals please and thank you .

    Rose1997 asked 6 months ago

    Hello,

    We are sorry to hear that you are struggling with these symptoms. There are multiple resources available on the Getting Healthy After COVID site as well as the After COVID: Information and resources to help you recover (MyHealth.Alberta.ca) sites. There is also a video series developed by the Alberta Health Living Program a. Information about many of these symptoms is provided. 

    We also suggest continuing to connect with your family doctor and/or calling the Rehabilitation Advice Line at 1-833-379-0563 as they may be able to connect you with a Dietician. If your symptoms are long lasting, you may be eligible for a referral to one of the specialty clinics that can support the management of these symptoms.

    Hopefully these symptoms will improve for you soon.

    Thank you,

    - The long COVID resources team

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    Once I test positive for Covid how long should I wait to take my second test?

    juliemazz asked 9 months ago

    Hello,

    This question is outside of the expertise of this group, but we encourage you to review the following AHS website:

    https://www.albertahealthservices.ca/topics/Page17034.aspx#retest

    You can also call Health Link (8-1-1) if you have additional questions.  

    Thank you,

    The long COVID resources team

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    When will there be support for kids with LC? My son is almost 5 months out of school now and not looking any better. GP and pedestrian are completely stumped. Basically have just said that time will heal, but lots of other countries are offering support for our young people.

    Stephanie Gagnon asked 9 months ago

    Hello,

    We are very sorry to hear that your son is struggling with long COVID symptoms. We are currently gathering and developing resources for children, including guidelines for Primary Care clinicians. The resources on the Getting Healthy After COVID-19: Information for patients as well as the After COVID-19: Information and resources to help you recover pages, are both available as well. These resources are designed for adults, so may not be appropriate for your son, however, some information may be useful to help him manage some of his symptoms. You can also check out https://www.longcovidkids.org/. We strongly encourage you to call the Rehabilitation Advice Line at 1-833-379-0563. Hopefully you are able to find your son the help he needs to continue on his recovery. Please let us know if you have more questions.

    Thank you,

    - Long COVID Resources Team

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    Why is there nothing -- no long covid clinics, no pediatric guidelines for doctors, nothing -- available in Alberta to support kids with long covid? My previously happy, healthy, active, ballet-dancing kid has missed nearly 4 months of grade six. He is desperate to get back to school, friends, activities, but can barely get out of bed most days. The debilitating fatigue, chest pain, chronic cough and aching body is more than he can bear. The few-and-far-between doctors we've seen just shrug their shoulders, tell us to "just get him back to school" (as if he hasn't tried so, so hard), suggest prozac. Wait times for specialists are atrocious. My kid's life is slipping away. This was his favourite year. He was so happy. He feels robbed. And the healthcare system, after 2 years of covid, has nothing to recommend to us. Meanwhile there are 3 long covid clinics in Edmonton, but none will admit kids. It's as if they don't matter.

    Sarah asked 9 months ago

    Hello,

    We are very sorry to hear that your son is struggling with long COVID symptoms. We are currently gathering and developing resources for children, including guidelines for Primary Care clinicians. The resources on the Getting Healthy After COVID-19: Information for patients as well as the After COVID-19: Information and resources to help you recover pages, are both available as well. These resources are designed for adults, so may not be appropriate for your son, however, some information may be useful to help him manage some of his symptoms. You can also check out https://www.longcovidkids.org/. We strongly encourage you to call the Rehabilitation Advice Line at 1-833-379-0563. Hopefully you are able to find your son the help he needs to continue on his recovery. Please let us know if you have more questions.

    Thank you,

    - Long COVID Resources Team

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    Why does AB not follow the CDC’s suggestion that long covid is 1 month of continuing symptoms after diagnosis of covid?

    Michele asked 9 months ago

    Hello,

    Thank you for your question. There is no internationally agreed definition of the long COVID condition yet. There are also a variety of terms used to describe ongoing symptoms and some definitions are more broad than others.

    AHS uses the definition published by the WHO in October 2021: “Post COVID-19 condition occurs in individuals with a history of probable or confirmed SARS-CoV-2 infection, usually 3 months from the onset of COVID-19 with symptoms that last for at least 2 months and cannot be explained by an alternative diagnosis. Common symptoms include fatigue, shortness of breath, cognitive dysfunction but also others which generally have an impact on everyday functioning. Symptoms may be new onset, following initial recovery from an acute COVID-19 episode, or persist from the initial illness. Symptoms may also fluctuate or relapse over time. A separate definition may be applicable for children.”

    The Centers for Disease Control (CDC) in the US uses the term ‘post-COVID conditions’ to describe long COVID, defined as a wide range of new, returning, or ongoing health problems people can experience four or more weeks after first being infected with the virus that causes COVID-19.

    The National Institute for Health and Care Excellence (NICE) in the UK uses the following definitions to classify the long-term effects of COVID-19: "Ongoing symptomatic COVID-19: Signs and symptoms of COVID‑19 from 4 weeks up to 12 weeks. Post-COVID-19 syndrome: Signs and symptoms that develop during or after an infection consistent with COVID‑19, continue for more than 12 weeks and are not explained by an alternative diagnosis. It usually presents with clusters of symptoms, often overlapping, which can fluctuate and change over time and can affect any system in the body. The term ‘long COVID’ is commonly used to describe signs and symptoms that continue or develop after acute COVID‑19. It includes both ongoing symptomatic COVID‑19 (from 4 to 12 weeks) and post‑COVID‑19 syndrome (12 weeks or more)."

    Thank you,

    - The Long COVID Resources Team