Long COVID Information & Resources

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A COVID-19 infection can result in long lasting symptoms such as breathing difficulties, headache, loss of smell and taste, brain fog, and fatigue. These long lasting symptoms have been termed “long COVID-19” and can have an impact on your physical and mental wellbeing. It can also affect family, friends, and caregivers of people who had COVID-19.

Your recovery and rehabilitation (regaining your strength) after COVID-19 can be challenging, but there are resources available to help manage your symptoms and get help when needed. Please note that these resources are general, and may not be appropriate for everyone. For more personalized information, please contact your family physician or the other options listed below.

Who can you call for help?

Online resources for patients to help manage their own symptoms:

If you are a health care provider, please visit the following sites for more information on managing long COVID:

A COVID-19 infection can result in long lasting symptoms such as breathing difficulties, headache, loss of smell and taste, brain fog, and fatigue. These long lasting symptoms have been termed “long COVID-19” and can have an impact on your physical and mental wellbeing. It can also affect family, friends, and caregivers of people who had COVID-19.

Your recovery and rehabilitation (regaining your strength) after COVID-19 can be challenging, but there are resources available to help manage your symptoms and get help when needed. Please note that these resources are general, and may not be appropriate for everyone. For more personalized information, please contact your family physician or the other options listed below.

Who can you call for help?

Online resources for patients to help manage their own symptoms:

If you are a health care provider, please visit the following sites for more information on managing long COVID:

Questions

Do you have a question for one of our experts, such as an individual with lived experience with Long COVID, or a doctor, nurse, therapist (physiotherapist, occupational, respiratory), dietician, mental health professional? Please ask your question here and one of our experts will get back to you ASAP.

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    Once I test positive for Covid how long should I wait to take my second test?

    juliemazz asked about 2 months ago

    Hello,

    This question is outside of the expertise of this group, but we encourage you to review the following AHS website:

    https://www.albertahealthservices.ca/topics/Page17034.aspx#retest

    You can also call Health Link (8-1-1) if you have additional questions.  

    Thank you,

    The long COVID resources team

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    When will there be support for kids with LC? My son is almost 5 months out of school now and not looking any better. GP and pedestrian are completely stumped. Basically have just said that time will heal, but lots of other countries are offering support for our young people.

    Stephanie Gagnon asked about 2 months ago

    Hello,

    We are very sorry to hear that your son is struggling with long COVID symptoms. We are currently gathering and developing resources for children, including guidelines for Primary Care clinicians. The resources on the Getting Healthy After COVID-19: Information for patients as well as the After COVID-19: Information and resources to help you recover pages, are both available as well. These resources are designed for adults, so may not be appropriate for your son, however, some information may be useful to help him manage some of his symptoms. You can also check out https://www.longcovidkids.org/. We strongly encourage you to call the Rehabilitation Advice Line at 1-833-379-0563. Hopefully you are able to find your son the help he needs to continue on his recovery. Please let us know if you have more questions.

    Thank you,

    - Long COVID Resources Team

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    Why is there nothing -- no long covid clinics, no pediatric guidelines for doctors, nothing -- available in Alberta to support kids with long covid? My previously happy, healthy, active, ballet-dancing kid has missed nearly 4 months of grade six. He is desperate to get back to school, friends, activities, but can barely get out of bed most days. The debilitating fatigue, chest pain, chronic cough and aching body is more than he can bear. The few-and-far-between doctors we've seen just shrug their shoulders, tell us to "just get him back to school" (as if he hasn't tried so, so hard), suggest prozac. Wait times for specialists are atrocious. My kid's life is slipping away. This was his favourite year. He was so happy. He feels robbed. And the healthcare system, after 2 years of covid, has nothing to recommend to us. Meanwhile there are 3 long covid clinics in Edmonton, but none will admit kids. It's as if they don't matter.

    Sarah asked about 2 months ago

    Hello,

    We are very sorry to hear that your son is struggling with long COVID symptoms. We are currently gathering and developing resources for children, including guidelines for Primary Care clinicians. The resources on the Getting Healthy After COVID-19: Information for patients as well as the After COVID-19: Information and resources to help you recover pages, are both available as well. These resources are designed for adults, so may not be appropriate for your son, however, some information may be useful to help him manage some of his symptoms. You can also check out https://www.longcovidkids.org/. We strongly encourage you to call the Rehabilitation Advice Line at 1-833-379-0563. Hopefully you are able to find your son the help he needs to continue on his recovery. Please let us know if you have more questions.

    Thank you,

    - Long COVID Resources Team

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    Why does AB not follow the CDC’s suggestion that long covid is 1 month of continuing symptoms after diagnosis of covid?

    Michele asked 2 months ago

    Hello,

    Thank you for your question. There is no internationally agreed definition of the long COVID condition yet. There are also a variety of terms used to describe ongoing symptoms and some definitions are more broad than others.

    AHS uses the definition published by the WHO in October 2021: “Post COVID-19 condition occurs in individuals with a history of probable or confirmed SARS-CoV-2 infection, usually 3 months from the onset of COVID-19 with symptoms that last for at least 2 months and cannot be explained by an alternative diagnosis. Common symptoms include fatigue, shortness of breath, cognitive dysfunction but also others which generally have an impact on everyday functioning. Symptoms may be new onset, following initial recovery from an acute COVID-19 episode, or persist from the initial illness. Symptoms may also fluctuate or relapse over time. A separate definition may be applicable for children.”

    The Centers for Disease Control (CDC) in the US uses the term ‘post-COVID conditions’ to describe long COVID, defined as a wide range of new, returning, or ongoing health problems people can experience four or more weeks after first being infected with the virus that causes COVID-19.

    The National Institute for Health and Care Excellence (NICE) in the UK uses the following definitions to classify the long-term effects of COVID-19: "Ongoing symptomatic COVID-19: Signs and symptoms of COVID‑19 from 4 weeks up to 12 weeks. Post-COVID-19 syndrome: Signs and symptoms that develop during or after an infection consistent with COVID‑19, continue for more than 12 weeks and are not explained by an alternative diagnosis. It usually presents with clusters of symptoms, often overlapping, which can fluctuate and change over time and can affect any system in the body. The term ‘long COVID’ is commonly used to describe signs and symptoms that continue or develop after acute COVID‑19. It includes both ongoing symptomatic COVID‑19 (from 4 to 12 weeks) and post‑COVID‑19 syndrome (12 weeks or more)."

    Thank you,

    - The Long COVID Resources Team

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    I tested positive for Covid-19 mid March 2022 and then showed negative three weeks later. Unfortunately I don't feel any better. Symptoms include loss of taste/smell, headaches, fever, dizziness, shortness of breath, coughing/phlegm and complete exhaustion (I can sleep up to 17 hours/day and still feel like I need a nap). My doctor recommended chest xrays but I was informed my lungs are "clear". I'm on a Symbicort inhaler 8x/ day. Feels like I'm breathing through a straw and wheezing. Completely out of breath if I climb more than 2 flights of stairs at home. Coughing up phlegm all day is taking a toll on my throat and chest. At what point should I be asking for additional help especially when it comes to my breathing and exhaustion? My doctor is wonderful but I'm not sure that my concerns are being taken seriously. Any help/recommendations is appreciated.

    Cheryl C asked 2 months ago

    Hello,

    We are sorry to hear that you are struggling with these symptoms. There are multiple resources available on the Getting Healthy After COVID site as well as the After COVID: Information and resources to help you recover (MyHealth.Alberta.ca) sites. There is also a free webinar series offered by the Alberta Health Living Program and a video series to accompany it. Information about many of these symptoms is provided. 

    We also suggest continuing to connect with your family doctor and/or calling the Rehabilitation Advice Line at 1-833-379-0563. If your symptoms are long lasting, you may be eligible for a referral to one of the specialty clinics that can support the management of these symptoms.

    Hopefully these symptoms will improve for you soon.

    Thank you,

    - The long COVID resources team

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    I had Covid in 2nd week of January and I recovered within 6/7 days. But after 15/17 days fee symptoms came back like Shortness of Breathing Cough And Fever. I took few medicine like Advil Tylenol Buckleys. Sadness is the coughing doesn’t go away but it’s true that I feel 50% better now. Sometimes I feel something unusual on my body.. feel pressure on lungs and Bottom part of my stomach ..What should I do now??

    Rakib Hk asked 3 months ago

    Hello,

    There are multiple resources available on the Getting Healthy After COVID site as well as the After COVID: Information and resources to help you recover (MyHealth.Alberta.ca) sites. There is also a free webinar series offered by the Alberta Health Living Program and a video series to accompany it.

    We also suggest connecting with your family doctor and/or calling the Rehabilitation Advice Line at 1-833-379-0563. 

    Hopefully your symptoms will improve soon.

    Thank you,

    - The long COVID resources team

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    I had Covid in November 2021. Many of the symptoms keep coming back. Constant burning of the lungs, headaches, swollen nodes around my neck, jawline & armpits. Just recently my smell has become distorted. Normal stuff smells awful. Like coffee brewing smells like sewage, deodorant smells like chemicals/metallic, and many other examples. Every time I exercise I get sick a day or two later. It’s very frustrating.

    Clayton asked 3 months ago

    Hello,

    We are sorry to hear that you are struggling with so many symptoms. There are multiple resources available on the Getting Healthy After COVID site as well as the After COVID: Information and resources to help you recover (MyHealth.Alberta.ca) sites. There is also a free webinar series offered by the Alberta Health Living Program and a video series to accompany it. Information about many of these symptoms is provided. 

    We also suggest connecting with your family doctor and/or calling the Rehabilitation Advice Line at 1-833-379-0563. You may be eligible for a referral to one of the specialty clinics that can support the management of these symptoms. 

    Hopefully these symptoms will improve for you soon.

    Thank you,

    - The long COVID resources team

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    My ears have been ringing for days it’s driving Me crazy argh 😖

    Angie asked 4 months ago

    Hello,

    We are sorry to hear that the ringing in your ears is so bothersome and is not going away. There is a resource on the MyHealth.Alberta.ca website for "ringing in the ears (tinnitus)" https://myhealth.alberta.ca/health/pages/conditions.aspx?Hwid=tinit which may be helpful. 

    In addition, we suggest speaking with your family doctor and/or calling the Rehabilitation Advice Line at 1-833-379-0563. 

    Hopefully this symptom will improve for you soon.

    Thank you,

    - The long COVID resources team

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    I believe I was exposed to covid. And now I have headaches or head pressure constantly. It's been a month of pain. What should I do? Should I continue to use pain medication?

    Sunshineseeker asked 3 months ago

    Hello,

    We are sorry to hear you are still experiencing headaches and pain. There are resources posted on the "Getting Healthy After COVID-19" website for pain management: https://myhealth.alberta.ca/health/pages/conditions.aspx?Hwid=aba6263 and headaches: https://myhealth.alberta.ca/health/pages/conditions.aspx?Hwid=heada

    In addition, we suggest speaking with your family doctor and/or calling the Rehabilitation Advice Line at 1-833-379-0563. 

    Hopefully these symptoms will improve for you soon.

    Thank you,

    - The long COVID resources team

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    My ears are ringing all day it’s driving me nuts . I have long covid it’s really getting me down so many symptoms 😥

    Angie asked 4 months ago

    Hello,

    We are sorry to hear that the ringing in your ears is so bothersome and is not going away. There is a resource on the MyHealth.Alberta.ca website for "ringing in the ears (tinnitus)" https://myhealth.alberta.ca/health/pages/conditions.aspx?Hwid=tinit which may be helpful. 

    In addition, we suggest speaking with your family doctor and/or calling the Rehabilitation Advice Line at 1-833-379-0563. 

    Hopefully this symptom will improve for you soon.

    Thank you,

    - The long COVID resources team